Clik here to view.
Flares happen
My napping partner This post is brought to you by Peanut, my faithful therapy rattie and napping partner as I find myself going splat a lot more with my 2nd worst flare since my initial 2012 onset...
View ArticleClik here to view.
Fatigue and EDS
Chief Napping Officer, Peanut Those who have any form of Ehlers-Danlos Syndrome (EDS) like me (with HEDS) can tell you there is definitely some fatigue involved from the strain on weak muscles, torn...
View ArticleClik here to view.
Calling All Geneticists
Wow, who would have thunk it? Careful what you ask for – you may get it: we seem to be raising enough collective awareness finally through regular and social media that more people are suspecting they...
View ArticleClik here to view.
5 Things You Should Know About Chronic Pain
Jan Groh:I’m slowly cooking up my own “Pain and EDS” post, but meanwhile, I felt this one by fellow blogger and sufferer Zyp Czyk worth sharing sooner than later. Originally posted on EDS Info...
View ArticleClik here to view.
Peanut Takes Her Last Nap March 2015
Peanut starts her Last Nap It is with a VERY heavy heart that I share the sad news that my beloved and sweet therapy rattie Peanut has moved on to cross to Rainbow Bridge suddenly last Friday March 20,...
View ArticleClik here to view.
MCAD linked to Autism Spectrum April 2015
Have we found a major cause of Autism finally? I’m late to the World Autism Awareness Day party which was yesterday, April 2, 2015 as I type this. (Though not late for Autism Awareness Month, which is...
View ArticleClik here to view.
Our Stories of Strength coming out May 2015
Writing as inspiration… (Alan Cleaver cc license) I’m thrilled to share that my short “story of strength” was included in the first edition anthology of Our Stories of Strength: Living With...
View ArticleClik here to view.
When Else to Suspect Ehlers-Danlos Syndrome
Bendy signs of EDS I wrote about my top five ways to suspect Ehlers-Danlos Syndrome over a year ago. These included: Fibromyalgia IBS Chronic Pain Anxiety, depression and Autism Spectrum Disorders...
View ArticleClik here to view.
Birds of a Feather
Fancy meeting you here… Birds of a feather flock together. And although we like to call ourselves medical “zebras”, for the purposes of this discussion I’m calling us birds to honor the age-old adage....
View ArticleClik here to view.
I don’t have low pain tolerance…
… I have a low pain threshold, and feel loads of pain. I have very high pain tolerance. I just have much more pain than most.
View ArticleClik here to view.
You Know You Have Ehlers-Danlos Syndrome When
… you haven’t fallen, but you still can’t get up.
View ArticleClik here to view.
Trust – and heal – your gut!
You may have noticed I don’t give much dietary advice here. In fact, to this point, I’ve given virtually none. And this is for a very good reason: just like medications and just about everything else...
View ArticleClik here to view.
The Chronic Constellation
Fasten your seatbelts and settle in with a snack again, you’re in for another long ride, smile. (I’ll try not to make it too bumpy!) Hopefully you’ve heard of “The Trifecta” by now – that is, the...
View ArticleClik here to view.
Autism and EDS
Is it a zebra or what? April is Autism Awareness Month and I actually started this post a year ago, in April of 2015 after sharing Dr. Theoharides’ exciting discovery connecting MCAD to Autism that I...
View ArticleClik here to view.
Heads up change is coming May 2016
Heads up caveat May 13, 2016: I expect a good portion of the educational information I provide on several of my pages here to change after the results of the discussions of all forms of Ehlers-Danlos...
View ArticleClik here to view.
Anxiety and EDS
The anxiety driven brain I’m writing this post while listening to the replay of The Anxiety Summit produced by Food and Mood Gal Trudy Scott this week (June 16, 2016). And I am not surprised to find...
View ArticleClik here to view.
50,000 Shades of Grey
Sorry to disappoint you erotica fans, but this post is not going to be nearly as sexy as the recently viral romance novel whose title it is reminiscent of. But I hope having lured you in, it will keep...
View ArticleClik here to view.
Reframing autism and more
Finding answers? I know, you came here originally to learn about a connective tissue disorder called Ehlers-Danlos Syndrome. I originally came here to write about a connective tissue disorder called...
View ArticleThink marathon…
Think marathon… not sprint, when trying to diagnose and treat a connective tissue disorder. (Large doses of patience and persistence are in order at all times.) – Jandroid
View ArticleClik here to view.
What is Normal
Are we semi-common “zebroids” after all? I know, “what is normal” is a really loaded question or statement, but I’m not intending it to be. I’m just trying to help highlight how many ways we have...
View Article
